Delegate: Dianne (Di) Spillane
Affiliation: Living With Narcolepsy in Australia
Short Bio: I am just providing some updates for my WSD activities.
Guest keynote speaker at the March meeting for NODDS, and assisting PWN4PWN by inviting their group members to share WSD story on the PWN website.
NODSS is a support group set up to help people with sleep disorders that was founded by psychologist Dr Dorothy Bruck in 1986, along with a small group of volunteers.They are staffed entirely by volunteers and raise funds for services through membership fees, donations, and government grants.
The aims of NODSS are:
To provide counselling, information, and support for people with narcolepsy or any other sleep disorders as well as their families and friends.
To provide support for doctors, health professionals and students.
To encourage and aid research into sleep disorders.
To gather information and make it accessible.
Services provided by NODSS are:
24 hour phone counseling and information service.
Bimonthly newsletter “The Reveille”
The NODSS Facebook Group – a safe online meeting place for members.
Bimonthly meetings in Melbourne with guest speakers
Information packages and a Library of articles and books.
Activity: I have been invited to be a guest keynote speaker for NODDS in March.
I will be presenting my Living With Narcolepsy in Australia Facebook Groups slideshow and discussing this year’s WSD theme Sleep Equity for Global health focusing on the inequities experienced by people who live with narcolepsy and IH in Australia, both globally and nationally.
This meeting can be attended in person for those who live in Melbourne, as well as online via Zoom.
I will also be assisting the PWN4PWN organization to be involved in WSD by writing an informational post regarding WSD and what Sleep Equity is in the PWN4PWN Facebook group, inviting the group members to share a personal story relating to this year’s theme. The stories will be available on the PWN4PWN website to assist with raising sleep health awareness for this year’s WSD. PWN4PWN website https://www.pwn4pwn.org/
Location: Ross House, 247-251 Flinders Lane, Melbourne, on the 4th floor. Online Zoom meeting.
Date of Activity: 18th of March
Submitted by: Dianne Spillane
