Delegate: Sheffield Children’s Hospital Narcolepsy Team
Affiliation: Sheffield Children’s Hospital, UK
Short Bio:
Activity: For the last decade Sheffield Children’s Hospital Narcolepsy Team have fundraised and organised family days for their narcolepsy patient cohort. The team support families living with the rare sleep disorder narcolepsy from across the UK’s South Yorkshire region and beyond. These annual days offer a network of peer support, alongside themed workshops and informative talks. Each year the team give up their time to fundraise, plan and organise this amazing day for families that use their service.
At this year’s event families could choose to take part in a creative pottery session, a psychology-led workshop and various team games. There was also an opportunity to attend a number of talks by clinicians and from fellow patients and families who delivered inspirational talks. As well as this, families benefitted from levels of peer support that can only be found at large meet ups of this nature. Parents find that interacting and sharing knowledge and experience of others in a similar situation in an informal, friendly atmosphere was truly invaluable.
Location: Sheffield
Date of Activity: Saturday 15th March 2025
Submitted by: Lowri Thomas
